Main goals for managing hemophilia worldwide 2023| ��ƽ��

Leading patient goals for managing hemophilia reported by people with hemophilia and caregivers worldwide as of 2023

Characteristic	Patient Data	Caregiver Data
Be able to conduct daily activities without worrying about experiencing a bleed	39%	40%
Be able to conduct daily activities without experiencing discomfort or pain	39%	38%
Reduce impact on their relationships with their friends, family, or caregivers	31%	34%
Simplify their treatment to one that can be taken less frequently/provides protection for longer	30%	31%
Increase their level of physical activity	30%	28%
Be able to sustain minor trauma without additional intervention	25%	25%
Reduce joint impairment	24%	22%
Reduce impact on their romantic relationships or intimacy	23%	20%

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Release date

October 2023

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Region

Worldwide, Australia, Canada, China, France, Germany, India, Italy, Japan, Spain, United Kingdom, United States

Survey time period

February 27–April 10, 2023

Age group

18 years and older

Method of interview

Online survey

Supplementary notes

Sample sizes:

People living with hemophilia: 950

Caregivers of people with hemophilia: 1,080

Citation formats

A survey from 2023 of patients with hemophilia and caregivers of people with hemophilia worldwide found that the main goal among these groups was for the patient to conduct daily activities without worrying about experiencing a bleed. Another common goal was to be able to perform daily activities without experiencing discomfort or pain. This statistic displays the leading patient goals for managing hemophilia reported by people with hemophilia and caregivers worldwide as of 2023.